look, i hate to do this.
i really do.
i don’t think i choose
death…
it’s just been around so much as of late.
a couple weeks ago we went to another funeral.
this one was for Crystal – one of Leanne’s oncology nurses
when she was sick.
Crystal was 34, had brown hair and shoes and a face and hands
that used to take a big needle and stick it straight into Leanne’s chest.
She also had a husband and three kids, including an infant.
And, since November or so, also had cancer.
Pain during intercourse.
That was her only symptom.
(as if we needed more reasons to not be having sex with each other)
Cervical cancer, undetectable by pap smear. And then….poof…..
a couple months later and she’s gone.
Before she died Leanne wrote her a letter.
A few weeks later Crystal called.
She asked Leanne what it was like losing her hair.
Leanne had trouble answering.
Later I asked her why and she said it was because
she always knew
that hers would grow back.
On the phone that day,
she knew that Crystal’s never would.
—–
And so I had to explain, again, to Lydia about death.
And again I took this from her bookshelf
I think it was first read to me when we had to put my cat Otto to sleep
after he attacked our sexist mailman, Mr. Christmas, and tore
a chunk of flesh out of his arm.
I read it to Lydia all the time.
It’s my favorite kids book.
It’s probably my favorite book, period.
And so we sat on the bed and read the book
and talked about Crystal and how she looked in the casket
and her lonely kids and husband and coworkers
and how her hair would never come back.
not really.
—–
every time we drive by the hospital
where leanne used to be, i point it out.
it’s the same hospital lydia was born in.
do you remember, i ask?
—–
when i was in junior high my parents got divorced
and moved. the new neighbors across the street from my
mom’s house invited us for “dinner”.
it was plain raw potatoes and salami on a plate.
later, against my will, i babysat for their little boy.
he was probably 5, the same age that lydia is now.
he rode a big wheel up and down bryant st.
i stopped him once and said:
“remember this. remember everything.”
he looked at me like i was crazy.
—–
i wonder what lydia really remembers.
the gloves and gown that she dragged all over the ward,
leanne’s face – her jaw clenching from the neupogen,
the endless stream of visitors coming to help us,
the pills, the hair shaved off in the sink.
and then i wonder how leanne knew her own hair
would come back.
—–
in bed i close the book and turn out the lights.
i get close to lydia on the pillow.
“how do you want to die?” i asked.
“softly,” she said.
yes.

14 Comments
May 17, 2009 at 8:58 am
wow. what a question.
May 17, 2009 at 8:59 am
p.s. i like the new photos up top.
May 17, 2009 at 9:35 am
She’s a smart one, that Lydia. I’ll have to look for that book.
And I was wondering about Leanne’s nurse. It’s been a while since you let your readers know of her diagnosis. And I’m sorry. As if we needed more proof of just how much cancer sucks…
May 17, 2009 at 10:53 am
Cancer is so unrelenting. I move between despair and rage while trying to hold on to a sliver of hope that some day the heartache will stop.
May 17, 2009 at 5:07 pm
I’m so sorry about Leanne’s nurse Crystal. Its so hard to loss a nurse to cancer. Been there. Its hard when they see you through such a hard time.
Cancer as Ross said is so unrelenting…Its hard I to hope and have for so long that the heartache it causes so many that one day it will just all stop. Hope that’s powerful its the one sliver we have to get us through it all.
I m just really sorry.
As for Lydia my has she grown! The answer softly .Awesome girl but then look at her Mom and Dad.
I am going to see if I can get a new copy of this book.
Take care of all of you Hope
May 17, 2009 at 9:15 pm
Thinking of you and of Crystal and her family and of all of us who have been touched by so many and so much in this big, big circle and beyond.
May 18, 2009 at 5:14 am
Adding Crystal’s family to our nightly prayers and hoping that you don’t have anymore loss about which to write.
May 19, 2009 at 7:34 pm
some days I just want to put my head down. I am sorry.
c
May 20, 2009 at 5:53 pm
Strange to feel the wind knocked out of me and hope swirl in at the same time. What an amazing girl. Girls, actually. You are surrounded by grace.
May 23, 2009 at 7:31 pm
this is a beautiful post dan. will have to go find that book. love the blog header too. i want to say more. i don’t have the words
May 24, 2009 at 11:20 am
In my thoughts and heart I hold you.
May 26, 2009 at 8:47 pm
Great blog! I am a cancer nurse and cancer survivor. I have added you to my blogroll – Cancer Blog Links at http://www.beingcancer.net
Take care, Dennis
June 7, 2009 at 6:03 pm
Oh holy God. You are a tremendous writer. The ability to communicate your experience of the world like this is precious. Thank you for sharing with us.
September 29, 2009 at 8:34 am
Just checking in on you guys after a long “absence.” Glad to see you and the family are doing well and thrilled about Rena….mazel tov! My condolences about Crystal…..devastating. We caught my wife’s in the pre-cancerous stage and went the preventative hysterectomy route….it’s truly insidious.