February 7, 2008...1:02 pm

flor de calabaza

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“i think you’re wrong,” lydia said to me
the other morning, after the first night of leanne
being back in the hospital.

“about what?”

“about mommy coming home,” she said.

“no, i’m right,” i said. “she’s coming home.”

it’s been days now and she’s not getting better.
in fact, people are starting to get worried.

and so it’s me and liddy, together at home,
sometimes friends stopping by, but mostly
just me and her.

and let me just say that in some ways you’re never truly a father
until the day you sit in the bathroom with your daughter
collecting stool samples together.

and strangely, amidst all of this, things have been fairly normal.
and that’s what scares me.
how unaffected she seems, and i seem, by all of this.

in a way it’d be easy to say that we’ve adapted,
and i suppose that’s exactly what it is.
but what does that mean?

that she’s used to her mother being sick.

i don’t like it.

—–

i think i remember the place.
a small taco stand where the woman was making
tortillas hecho de mano.

i could be wrong, it could’ve been here,
a salad i made, anything really.

but i think for some reason it was that taco stand.
the little bowls of salsa and mushrooms and, yes,
flor de calabaza, with little spoons.

how the woman filled the tortillas with the chopped
up squash blossom, and how (yes, i’m sure i’m too much a lousy poet
to let this go), how the blossom opened inside of leanne.

—–

it’s been too long now.
too long to have a fever.
too long to not eat.
too long for it just to be e. coli maybe.

and, as i wrote before, she’s not getting any better yet.

—–

i took lydia to see her yesterday.
i made her promise not to try and hug her or kiss her,
that she had to wear a gown and gloves and that we had
to leave quickly.

“do you think you can do that?” i asked.
“yes”

and so we went and i wrapped her up in the ridiculously large
yellow gown and walked her into the hospital room
where leanne was feverish in the bed.

she sat in a chair and watched the tv.
her one transgression: a kiss on the knee
before we left.

and that was it.

—–

—–

last january: cancer
this january: e. coli
do not think it hasn’t crossed my mind that next january
i should start a new blog titled:
follow lingling as she gives genital warts a beatdown.
or an ear infection.

oh, how lovely that would be.

i want people to know how much i hate this.
how much i hate having something to write about.
how indulgent i think it is.
how disgusted i am by it (but how writing is the only thing
i know how to do that will make me feel any better).
how i’m exhausted by the life and death of it all.
how i want to live in the trivial for a while.
just a while.

how i want so desperately for lydia to be wrong,
and for me to be right about her coming home
and staying there.

27 Comments

  • Although I check back here often hoping for an update… I can honestly say that I hate you have something to write about as well! My thoughts, prayers, hopes & dreams are with your family! I shall desperately hope Lydia is wrong as well…

  • Still praying for all of you. I pray before I click on the link and pray again after I read and several times through out the day.

    Get well Leanne!

  • I now get nervous when there’s a post over here. I hate that you have something to write about. Please get well soon.

  • Please get well soon, Leanne! I like coming here and not seeing updates for weeks and weeks on end! That shows me that you are busy living life!

  • I don’t know what to say, or how to say it. I am so sad and so worried for you all.

  • I am praying for all of you! I’m sorry you are having to go through all of this.

  • Same from me Daniel.
    Bonnie

  • Praying that things get a bit better daily.
    Keep writing Daniel if it helps.. I to am sorry this is all going on..Takes us so long to fight any thing we get with this immune compromised thing. Hopefully things are going to improve. Gentle Hugs all of You.

  • she’ll be home, danny. and then the three of you guys can work on that stool collection as a family.

  • I have been lurking here since the beginning but have never commented until now because I didn’t know quite what to say. Now I just want to tell you that she’ll be home. I just know she will.

  • I too am sorry that you have something to write. I agree with Louisa. I know she will come home.

  • Daniel,
    Sitting here in New York City, I am so much there in Denver … It is only a few hours since I read your email that Leanne was back in the hospital with an e.coli infection and struggling to fight it. I hadn’t looked at the Blog yet; since I met you this January at the Digital Storytelling workshop in Denver with my friends, colleagues, nurses all searching for ways to express what we live. Since that weekend, I have been thinking so much about you, and Leanne and Lydia in the distance, knowing they were there, part of you, and part of what makes you who you are…and what you give to the rest of us… ways to feel, express and share all that life is.
    So when I read your words this morning about Leanne, about what you must be going through, about Lydia, and I read the blog, I sat for a long time crying, sobbing, and wondering what to do to help you all, to ease some of the hurt, the struggles, as I know everyone who is aware of what is going on feels… and knowing that perhaps it is “just being there” and sending thoughts, ideas, wishes, whatever…

    So I got up, and put on music, danced, thought about all I loved, who I loved, why I loved, and I realized the music was making me feel energy, energy to know that there is a future, for all of us! AND I remembered what I had read about Leanne, and about Daniel, and in between so many lines there was music… the Mariachi band that the cancer cells hate, the ipod someone gave to Leanne, and the music that Leanne had shared with someone… so I thought..does she have music in her room, in her isolation room? Music heals, music keeps you company, music is magical.

    And then as I was sitting down to work, I read an article about a research article by a nurse from a hospital in Rhode Island who had done a small research project about music… would it help people heal..and it did..YES….SO..

    Daniel, you probably have already done this, but if not see if you can get an ipod, CD player in her room, something, so she has music to surround her. [see I can't help but trying to help...]

    My heart aches for you all, but somehow I am joyful too, at the love I hear in all of your words, Daniel, and at Leanne words when she writes, and definitely in the pictures you have posted…what more can we ask of life? and each other?
    Lena

  • You guys are in my thoughts and prayers.

  • Dang.

    My Christian friends in Tennessee make fun when I send “good vibes” instead of prayers, but they do count. Good, sincere, ridiculously focused, mad healing, laser-beam vibes to you all.

  • the world needs your writing, but not like this
    the world needs a strong and healthy Leanne
    her family needs her too
    do what you have to do - write, hold her hand, take care of Lydia, whatever it is, it’s right

  • Continued thoughts and prayers to all of you & a million wishes for wellness.

  • I was hoping to come here and read that she is all better now …. E. Coli gone. What an ordeal for you guys, just when things were so much better.

    Praying for you guys.

  • Wishing you all the wellness and happiness in the world…and then some. My heart goes out to each of you along with strength and hope and someday tears of joy and overwhelming happiness.

    Friend of Danielle M. and Kelly

  • I keep checking back for updates. You are both in my prayers; life is so unfair sometimes.

  • i really thought you were done writing this blog.

    but, here we are.

    all our thoughts are behind her and under her, and everywhere where they can be of support. i think they might have helped last time…i’ll think 2x as hard, now.

  • I am a stay at home mom in Tennessee, you don’t know me but I check in with your blog and always smile when there is no new entry. I knew it meant life was good and you were happily busy. I started to cry when I saw your new post. Please know strangers around the world are praying for you and your family. May your family find peace through these hard days.

  • I haven’t written before, i just found your site a few days ago and read it from beginning to end. Your family is amazing and ispring, and i just wanted to let you know that positive thoughts are coming from Maine. Please be well.

    julia

  • I’ll bethinking of you three, wishing for days when kisses are given everywhere but in a hospital.

  • Thinking and praying for you all. Singing lots of songs in your direction. Lighting candles. Sending love. And having a word or two with Whoever thinks this e coli business is a Good Idea. Cause it’s just not. The Good Idea: You get your lives back. Stable. Healthy. Happy. Joyous.

    With you with you with you.

    Love,

    Laurie

  • I think I’ve checked on you guys about 30 times since your last post. I pray the e coli got a beatdown this weekend! Sending warm prayers from AZ.

  • Dan, I am praying for your family. I look forward to reading the news that Leanne is coming home soon, feeling healthy and alive, and that we hear about your boring mundane days. You all deserve it.

  • when i grow up i want to write like you.
    peace and health to you all

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