October 12, 2007...5:12 am
it’s been a long time
since i’ve written.
since i couldn’t sleep -
long time meaning, in our new view of time,
weeks.
but here i am at 4am on a friday awake.
leanne was in bed next to me, and lydia next to her
and then me, listening.
i’ve been listening a lot lately.
—–
two weeks ago we heard 8 gunshots.
i got up and went to the window
and saw a car, all shot up and a boy
dragging himself in the street,
his white sweatpants mottled with blood.
two days after that, i heard a crash.
a man on our street
parked his car in his driveway.
he got out and somehow it rolled down, by itself,
and crushed another car.
and then on monday we heard sirens.
there were cop cars and a fire engine and a coroner
parked a few houses away.
our neighbor had killed herself.
this is the woman, who upon learning that leanne had cancer,
said:
i know exactly how you feel. i have fibro-myalgia.
we mocked her a bit.
ok, maybe a lot.
how could she have said this? we asked.
but what strikes me as true is that she probably did know how
leanne felt.
she knew what it felt like to have something eating you away
from the inside, out.
not the fibro-myalgia, of course,
but something else.
she was, in her way, trying to connect.
—–
so i’m awake tonight.
the first night in a long time.
i haven’t listened at night in a long time,
how i want to hear the trees turning red,
how they know exactly how to go,
how i can’t get used to the furnace turning itself on,
how i walked down the stairs and into my office
and browsed for a while,
not content to read about the Rockies winning in the desert,
how instead i chose to visit the blog of a woman
who i’ve written about before.
she’s the one who emailed us in the spring,
right after the post i wrote about leanne itching,
and how she read that and said she’d been itching since july,
and how she went to the doctor and she, too, had lymphoma.
there are few blogs i follow, but every once in a while i’d check in on her.
and the news was good.
she had practically the same thing as leanne, though, i don’t think it was as bad.
and she got a clean scan.
just like that.
even tonight when i went by there, i saw that she hadn’t written
since july, since that post about the clean scan,
and so i clicked on the comments.
and she’s dead.
the chemo had killed the cancer, yes,
but it had also killed her lungs
and though the cancer was gone,
she couldn’t breathe.
just like that.
—–
so tonight i’m writing.
i’m writing because i’ve listened for awhile and now it’s time.
i’m writing to tell you that i’m aware
of the “monstrously good dose of luck” we’ve had.
i’m writing because it is night again and i want to,
if only to let you know that leanne is still alive,
i’m writing to tell you
that it is so quiet tonight that i can, yes, even from downstairs,
hear her breathing,
that there was a reason for me to be awake tonight,
that the reason is to go outside, which i will do now,
and listen to the echo of the gunshots and the car crash and the sirens
and two women who have stopped breathing
and listen to the trees turn red
and exhale
and expire.
26 Comments
October 12, 2007 at 6:47 am
I’m sorry you found out this way. I thought you knew (or I would have emailed you). Lisa was my friend too…and I know she found great strength in your words and your kindness. She spoke of you with love and respect and I know she wanted health and happiness for your family. Enjoy each other and your lives together.
October 12, 2007 at 7:48 am
You and Leanne have been on my mind recently. You hadn’t posted and I was wondering how you are doing. I had thought to e-mail you and ask you to at least post a hair picture :-) I’m sorry there has still been so much bad news recently but I’m thrilled that your family is well.
October 12, 2007 at 7:52 am
I had wondered. And worried a little. It is very good to know. Happy fall to you.
And words can’t help the ones who loved Lisa and the others - but maybe thoughts and prayers can. So I’ll send them.
October 12, 2007 at 9:13 am
I’m glad to see that you’ve posted. We had been wondering how you guys were doing. Glad to hear all are doing well.
I’m sorry to hear of all the bad news around you. Be thankful of the strength (and yes, luck) that surrounds you and Leanne.
October 12, 2007 at 9:56 am
What sad news about Lisa. I remember when you wrote about her, but I didn’t know she had a blog so I hadn’t heard the most recent news. So very very sad.
October 12, 2007 at 9:57 am
Hi….GREAT to hear that Leanne is doing well. You probably don’t remember me, but I posted a few times….I have lymphocyte predominance Hodgkins, in remission for about 7 years now…just wanted to share some good news, maybe dispel a little darkness….we live on one of those “noisy, active” blocks, too…..anyway, my beautiful son Jason had his “pre-Bar Mitzvah” this morning. I call it that, but it’s really just the ceremony during which he prays and reads from the Torah, puts on a prayer implement called tephillin for the first time, and listens to his proud mother cry a lot…..all in preparation for his big day, November 10. Life is good.
October 12, 2007 at 10:11 am
Your post today brought tears to my eyes. Tears for the lives lost and the dreams gone. But you and Leanne and Lydia are still here. Still moving forward and still making lots of new memories. Even as life deals us great tragedies, you can see the miracles among them, that is the blessing.
Take care.
October 12, 2007 at 7:27 pm
I still check your page all the time. I don’t miss lymphoma but I miss hearing your voice.
We went to a funeral of a 12 year old boy today.
Life is good but life is not easy or fair for anyone. No matter how good the baseball team.
October 12, 2007 at 8:05 pm
i am do glad you wrote. had an email in draft to send to check in on you’s.
i am glad leanne is okay.
but your writing about is unnerving and for those of us who have lymphoma and have dealt with it..one on one. those of us who survive are the luckiest of the lucky.
i to am sorry you found out that way.
sept 29th was my tenth anniversary of my dx. so that is a huge milestone. but i can’t forget much just that i have been given the blessing of life and that is awesome.
its funny but we need time to exhale to go on…to move forward.
take care of all of you.
hope
October 12, 2007 at 8:05 pm
I’ve been checking your blog every day for an update. I am so happy that Leanne is doing well. But I am sorry to read of Lisa’s passing. I wish I could understand why things happen the way they do.
Great to hear from you again. You’ve been missed.
J-L
October 12, 2007 at 8:24 pm
Wow… I am truly sorry that Lisa died, and that the woman down the street took her own life. It could have been fibromyalgia and nothing else…life in never ending pain isn’t much of a life. One of Kevrokian’s last patients was Boston Bill, a man with FMS…it can be horrific. I’m one of the lucky ones, mine is mild. But yeah, it can be bad enough you can’t bare to go on living.
Mostly, I’m really glad Leanne is doing all right. Her breathing must sound like music in the night…
October 13, 2007 at 12:54 pm
wow.
i was just clicking over to leave a comment admonishing you to write something again, and: surprise!
i’m glad to hear that all is quiet.
tomorrow i’ll go and read the other woman’s story…in the end, that’s all we have, right?
p.s. love your ring, and i’m rooting for your rockies!
October 13, 2007 at 3:29 pm
Dan it was good to hear from you. I check now and again for my D/L dose. You and your friends are in my prayers.
October 15, 2007 at 10:20 am
That took my breath away. To read about the other blogger. I bookmarked her page after you referred us there, and every now and again, I would periodically visit, to see if she had updated. She hadn’t, and now I find out that she is dead! The “apparent” randomness of it all is crazy! That she would find this blog, and read this blog, and later think, “me too,” about the itching, that the itching would really turn out to be cancer, and that, oh so shortly thereafter, she would be dead - is mind boggling, and perhaps my worst nightmare.
For all that apparent randomness, though, that “needle in a haystack” story tells me a few universal truths: we don’t ever know when, where, or how we’ll go, only that we will go, so it’s best to live while we can, the best way that we can. And that is that.
Thank you for sharing all that you share with us.
October 15, 2007 at 11:44 am
d:
it makes me endlessly happy to know that she’s ok and you’re ok. as ok as can be without ignoring the real. i think of you often.
m.
October 15, 2007 at 5:40 pm
Thanks for the beautifully written post and update.
October 15, 2007 at 7:31 pm
Oh man, that sucks. Truly sucks that cancer (or even crazier, the side effects from treatment of cancer) has taken another life.
Count me in as one of the worried in your absence. Hope you 3 find peace, snuggled together in your bed.
October 15, 2007 at 8:25 pm
Ebbing and Flowing. That’s life. One swells and grows, one shrinks and dies. I’m so glad your Leanne is of the swelling variety.
October 20, 2007 at 7:26 pm
Sweet Lovers of Life and Child,
How wonderful the silence to hear the breathing of your beloved wife as she sleeps with your beautiful daughter.
I’ve learned over the years one has to be open to see our blessings in the midst of the termoil life can hand us.
I remember when my children were young and how some evenings I would just sit in their rooms just to hear their breaths and how each one brought me a special kind of joy nothing else had given me. Thank you for allowing us to share that beautiful moment with you and God Bless all of you for being open to see the miricles life brings us even with termoil all around. Hugs, Sondra
October 22, 2007 at 9:17 am
I have read from the beginning and never commented. I knew there was so much going on that I read and watched and prayed from afar. It is sad about Lisa, but perhaps your words gave her more time…perhaps the cancer would have killed her sooner than the treatments. In any case, I am glad for your family, for your experiences, for your writing, and hopeful that there will be many good years ahead for all of you.
October 23, 2007 at 11:43 am
That’s a lot to think about. I can see why you were up.
We have had our moments here as Joe’s six year anniversary creeps up on us ( the 31st of this month).
This weekend I stayed up to listen to him breath.
We got a reminder slap in the form of a dog ball. We were out with our 5 year old, and she was using one of those “things” to throw the dog ball - and she swung like a pro. The ball hit Joe right in the neck - right where there is nothing but skin covering his carotid artery. I think we were both thinking the same thing “don’t die in front of KM” It’s pathetically funny in a warped way now, but that day it sucked.
He’s fine - just sore. KM is fine but was sobbing at the time.
We are breathing again.
October 23, 2007 at 12:19 pm
“May the wind be always at your back(s)”…
xoxo from smokey, wind-battered SoCal
October 24, 2007 at 11:45 pm
I appreciate you writing again. It’s strange how a family I have never met can have such an impact on me. I am happy to hear that you three are doing well. I was just thinking of you yesterday and was wondering…
I was thinking of you and your family because my dad is in remission from throat cancer. He had an appointment on Monday and they found a lump on his tongue. When he was going through his treatments, it was so hard to see him so…unlike dad. Looking back on it, though, my eyes are more opened to the wonder and beauty of life and I am thankful that I learned such a valuable lesson. But just thinking that I might have to go through it again, that my family will have to go through it again…leaves a blah taste in my mouth. Its hard to not focus on “what if.”
October 26, 2007 at 6:01 am
Hi,
I just found your wonderful blog and just wanted to offer my thoughts of continued health and strength to you. I too have dealt with lymphoma - Hodgkin’s Disease.
Wishing you health and happiness,
Duane
http://journalofaprizefighter.blogspot.com
October 28, 2007 at 7:58 pm
I’ve been a ‘lurker’ and have been so touched by all that you have shared. I just came across your blog recently, so I didn’t actually ‘go through’ the whole process along with you. But the way you share is so inspiring and so brave. Thank you for sharing your story, as hard as it has been at times.
I wrote about you all tonight and posted an award for your blog (you know those nice, sometimes-silly, usually-pretty-cool, now-pass-this-along-to-others kind of blog awards). Because your story was so on my heart the last few weeks I just had to share about it, but I know that passing along blog awards probably isn’t a high priority for you… I just wanted to recognize you in some way, and this worked. Thanks for sharing your story.
http://sweetmummy.lifewithchrist.org/permalink/36134.html
November 8, 2007 at 6:36 pm
Checking in to check things out. I’m sorry for the sadness, the lives that have been lost. I’m so happy for Leanne’s clear scans…for her life and the life of her family.
Breathe.
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