sometimes
leanne comes around the corner
and sometimes i come into a room and…
someone is robbing our house,
the contractor just walked out of our bathroom,
i have a new roommate who moved in
without asking.
i don’t recognize her.
my own wife.
——-
in college i shared a dorm with adrian.
adrian, the year before college started,
was hit by a drunk driver while in his vw bug.
the car rolled over on his arm
and exploded.
and adrian was trapped inside.
half of his face was burned off, his neck, his ear,
all melted off.
i was done looking at him almost immediately.
and i used to go with him everywhere.
what i never got done with was watching others
watch him.
it was a new life for him. as college is for everyone.
when you can reinvent yourself
because nobody knows who came before the you
you choose to show.
————-
and i wonder what i must be like for leanne,
to walk by the mirror and not recognize herself
from time to time.
to have something change your look
for you.
a week ago we stopped by our favorite ethiopian restaurant with kevin and carley,
who had taken lydia out for dinner (bless them),
and the owner, who knows us and coddles lydia and always gives us hugs,
when leanne went to hug her,
said “do i know you?”
———–
i know that a face
is just a face.
that it’s not everything,
and hardly anything
at all.
but it’s something…
something immediate and present and unavoidable,
a chunk of rock, the sun, a wall.
that not being recognized by your face
hurts in a subterranian sort of way.
————-
nobody at school knew what adrian looked like before the accident.
he couldn’t be unrecognized if he tried.
but i wonder what it was like when he went home for break.
we never talked about that.
i do remember my first halloween with him,
how he showed up to a party dressed like freddy krueger
and how all the girls who didn’t know him
kept coming up and brushing their hands over his face.
it looks so real, they said.
and he’d just laugh.
——————-
lee’s co-worker scott shaved his head.
our brother-in-law eric shaved his head too.
even our live-in oncologist/neighbor ari did it.
then our 10 year old neighbor, kayleigh, cut off most of her long brown hair.
and then noah shaved his head:
noah is 6.
noah’s father is about to go in for yet another in a far-too-long line of heart surgeries.
every time noah comes over, we make something in the kitchen.
something that no one makes, like ketchup from scratch, or bubble gum from scratch,
but yesterday we made real pretzels and fresh mustard.
here is the letter i wrote him:
noah,
it was so, so, so good to see you yesterday. i packed some extra
pretzels in the bag for you and enough so that your dad can get all the
homemade pretzel strength he needs for his surgery this week.
pretzels make all the difference.
and i just want to say something again that i said to you yesterday, which
is that not only are you funny and cool and wacky and crazy and good, you’re
compassionate - that means that you think about how other people feel.
and that’s something that kids don’t usually do. and to tell you the truth,
that’s something that a lot of adults don’t even do.
what you did for leanne in shaving off your hair made her feel less alone.
what a tremendous gift to give, noah. making her feel less alone.
you’re an amazing friend.
really.
i hope that in coming over and spending time with us, maybe you feel less
alone too. you and i, we both have someone we love in our house who doesn’t
feel so good. so in that way, we’re brothers. we’re trying to stay strong
while we have to watch the people we love be sick.
and that’s a hard place to be.
never alone.
love,
danny

26 Comments
February 17, 2007 at 11:11 pm
Once again, your beautiful words bring tears to my eyes. Although I am a stranger I keep you and your family in my heart and thoughts on this journey you are traveling.
February 17, 2007 at 11:13 pm
What an amazing little kid, that Noah. And what a wonderful letter you wrote to him, one which I suspect he will hold on to for a long time.
February 17, 2007 at 11:30 pm
i bet that letter made him cry, it made me cry
February 18, 2007 at 1:12 am
You don’t know me, but I feel I have come to know you through your amazing words. Your story has touched me and so many others, and I hope you know there are many people who are praying for your beautiful family.
What a gift Noah gave you, and you him.
February 18, 2007 at 1:59 am
You have touched my heart as you have shared pieces of yours. Thank you for letting us strangers into your lives at this most difficult time. You continue to amaze me, touch me, make me laugh and make me cry. You are all in my daily prayers. May God bless you with His healing and His strength.
February 18, 2007 at 2:36 am
Gosh Danny, that was a awesome! What a super kid that Noah must be. You are lucky to have some super friends to surround yourselves with.
Still prayin’ for you guys and will keep on keepin’ on until it all goes away….and it will hopefully soon. ;)
February 18, 2007 at 3:00 am
I bet Noah didn’t say a single word about a pink bra. Now that he’s broken barriers with you Big D, you’ll have to muster up the courage for something along the lines of the jock strap talk with him — whether or not that strap is pink.
February 18, 2007 at 4:18 am
Honestly, I see the photos and Leanne glows with beauty…it is so hard to realize a person so radiant is so sick at this time. It is also hard to believe that a person so beautiful and radiant could do anything but become completely well again. And my prayers continue for just that to happen.
And Noah, he totally rocks. Oh, you too, D.
I really wish I actually knew you guys!
February 18, 2007 at 8:18 am
Danny, the letter was absolutely perfect. What an amazing friend Noah is and what amazing friends you are to him. Pretzels? I haven’t made those since you could buy frozen ones and just pour on the salt and stick them in the oven. And I just have to say, Lee, I always knew you were pretty, but I didn’t realize how beautiful you are until I see you without your long hair! You are incredible. I think of you all the time — Noah is not alone, you are not alone. Love you — Jen (and Fred, Alexi and Julia)
February 18, 2007 at 1:13 pm
No words, just tears in my eyes. Love you all. Kisses to Lee, Dan, Lydia, and to Noah. Kisses from me, Haim, Adi and Leeav
February 18, 2007 at 6:51 pm
No, you are never alone. Love, Sarah
February 18, 2007 at 6:53 pm
Sounds like you and Noah are both lucky. Some of the wisest souls come in the young.
February 18, 2007 at 8:52 pm
All I can say is. This blog is awesome it brought tears to my eyes but smiles to my face.
I sat here and read the whole blog. As a ten year three time survivor of nhl stage4. I say give it the *Beatdown it deserves!!!*
My thoughts and prayers are with all of you in the fight.
Hope
February 19, 2007 at 4:28 am
Happy birthday Danny. You are an amazing person. Thanks for being such a great friend.
February 19, 2007 at 2:26 pm
lee…i keep thinking of that first blizzard at school…everyone playing, laughing, completely carefree…it was also the day we went to war in the gulf…you and i got cozy in your bed and just watched the news and talked…and talked…we were the only ones inside that day…we couldn’t figure out why…but it was perfect…just as the silence of the snow falling outside was eerily perfect…and the juxtaposition of what was happening outside our dorm with that overseas was alarming and equally predictable…and maybe we were “too serious”…but our actions truly reflected who we were…who we are…today i am watching all those around me playing outside, laughing, seemingly carefree…but i am inside, with you…and there is no other place i want to be…there is no other place i could be…and i would give anything to be snuggled up next to you talking…and talking. i love you leanne.
February 19, 2007 at 6:33 pm
Wow, and now Britney Spears has shaved her head for you too? I knew you two were well-connected, but I had no idea to what extent. Now I’m really, really glad I know you.
http://usmagazine.com/britney_spears_rehab
February 19, 2007 at 7:03 pm
I am sitting here with tears rolling down my face….you write beautifully, and you have an uncanny ability to make your readers feel like a part of your family, even if we have never met you. I know Noah will cherish that letter for the rest of his life. It was beautiful.
February 19, 2007 at 10:05 pm
All these shaved heads—please excuse if I don’t join you. Noah, you are incredible! You look beautiful, Lee! I hope that you are still NOT feeling the lousy effects of the chemo, even though it IS doing its job.
Love and hugs,
Phyllis
February 20, 2007 at 3:03 am
Thanks to everybody. Shaving your head is no big deal. I did it because my friend had cancer and she is not alone.
February 20, 2007 at 5:10 am
Children get it. They do. They understand because their hearts are open and their eyes are open. Because they are unafraid. And because they believe. God bless.
February 20, 2007 at 4:25 pm
God, you people are amazing. The eloquence of these posts knocks me on my rear.
And because of these posts, and these photos, people I don’t even know have wandered into my prayers.
Sending peace and positive thoughts from Pennsylvania.
February 21, 2007 at 4:26 pm
I love it when people have each other to lean on. I love acts of kindness, friendship, support, love, and generosity. Thank God for those moments!
February 23, 2007 at 4:35 am
drip . . . drip . . . bluzzy eyes.
good for you for affirming this little guy’s gift.
keep on keepin’ on
February 23, 2007 at 12:25 pm
BTDT Sometimes catching Joe glance at himself in a mirror hurt so much I could taste it.
Your letter to Noah? One of those sorts I am sure will be tucked away & saved.
February 25, 2007 at 1:54 pm
Leanne –
Just catching up on your site. You look beautiful! And I love to hear Daniel’s beautiful words about you. Continuing to think of you and sending my love.
February 27, 2007 at 8:19 pm
What a sweet, sweet letter. What a sweet kid.
Blessings to you all~
Leave a Reply