the best kind of cancer you can get
that’s what they say, the doctors.
like the best way to split your lip (on the edge of a foil yogurt top)
or the best weather in which to have a mental break (when the sun is out, but behind some clouds)
or the best kind of nausea (at home, with no dry heaves)
or the best room in which to find your spouse cheating on you (in the garage)
or the best limb to be malformed (the arm, the left one)
or the best rug on which to overflow your toilet (brown, non-shag)
the best of the worst.
that’s what we’re down to.
and, i suppose, that’s what we’ll take.
the best of the worst.
and maybe it is.
but to me
the best kind of cancer
is the kind of cancer
you can write about
and hug over
and eat your first meat in 10 years because of
and hear from people around the world about
and inspire some to give blood because of
and hold your child and laugh during
and drink yoohoo throughout
and live through.
and live through.
——-
my friend carley wrote me about a poem she found.
the saddest poem ever, she said, about a monkey and child soldier.
i’m caught
between wanting
to hear the saddest poem
and feeling
like i’ve already heard it.
like i’m writing it right now,
or as if i’m in the saddest poem in the world.
in a line or even maybe a whole stanza.
and there’s a sign saying:
keep your arms and feet (your heart, your fear) inside
the poem
at all times.
i am not a monkey, but maybe lydia is.
and maybe the child soldier is our dead baby.
or maybe i am the child soldier and leanne is the monkey
with tubes coming out of her arms.
or maybe lydia is both.
both the monkey
and the child soldier.
and we are watching, from behind a fence.
———–
last night, i have to tell you this:
lydia looked at leanne and said:
mommy, if you die,
you die.
then turned around and stomped away
and went back to jumping off her bed.
just like that.
we don’t know where it came from.
any of this.
leanne cried.
she felt it was an act
of meanness.
i felt it was an act
of grace, an attempt of assuaging.
lydia had watched bambi earlier in the day
with her aunt nancy.
aunt nancy, whose father died of cancer.
bambi, whose mother dies
and leaves her
in a meadow.
——–
i want to wake up too.
we all do.
i want to wake up as much as i want
to go
to sleep.
—–
(note: please don’t comment on this post in any sort of “it’s ok” way, or say anything to leanne about what lydia said. please don’t try and interpret it or make it ok or not ok. this is not what we need. we just need to be heard.
so hear us.)
32 Comments
February 2, 2007 at 7:08 pm
I hear you…I feel you too. I haven’t been through what you are going through, my dad had cancer last year, but he got it and had no chance to fight it, it got him. So we didn’t have to deal with all this fear and worry and watch him worry. He never knew how sick he was. Being the ones to watch and feel helpless is terrible.
I hear you. I really do.
February 2, 2007 at 7:10 pm
Strangers in Seattle here
still listening
still touched by your words
still lighting a candle
still steadfast in the call to being a better, more present mom
because of YOUR inspiration (thanks)
Our Best to you – strength, courage, hope!
February 2, 2007 at 7:27 pm
heard. loud. and. clear. from 2300 miles or something like that away.
February 2, 2007 at 7:51 pm
We hear you. Still giving blood. Still hoping and praying for you. Just strangers from far away.
February 2, 2007 at 7:53 pm
i am sending good energy your way – hugs and kisses to all of you – linda
February 2, 2007 at 8:50 pm
I am listening, and I am praying for you.
February 2, 2007 at 9:20 pm
love. love. and more love.
from t.
February 2, 2007 at 9:44 pm
Dan and Leanne…as long as you need and want to talk, we are here…listening.
February 2, 2007 at 10:15 pm
Stranger here in Florida. I know how you feel, but all I really have to add is this: People do get better. All the time. Try and focus on that. Hard to do right now I know, but keep trying to focus on where you will be in a year.
My mom has had cancer 2x in the female organs, 1x in the kidney, 1x in the colon and the last time it was breast cancer. Chemo is bad, but it doesn’t last forever. Mom is healthy today and she will be the first to tell you focus on the future and all the good things in your life and the good things to come. Life will never be the same, but it can still be good for you. You already have the best thing to get through this ordeal, love. Load of it from each other, Lydia, family and friends.
Hugs Leanne and you’re all in my prayers.
February 2, 2007 at 10:26 pm
It is not all right! It is all wrong! You suffer like no one else, because you are unique. Hug Leeann and Lydia and never, ever stop saying you love them. God Bless
February 2, 2007 at 10:45 pm
Danny Reines is my nephew. I found your blog through his – the one about the candle – ever since then, I’ve read about what’s happening in your life every day and want you to know that I am one more person who is praying for your family. I don’t know you but I care about you.
February 3, 2007 at 12:41 am
I am listening.
I am loving and caring and praying for you and Leeann and Lydia and your baby.
February 3, 2007 at 1:32 am
here’s to living through, and to waking and sleeping, and to loving and to listening
February 3, 2007 at 2:26 am
I remember the day my husband’s hair fell out. It was the worst one. Of all of the bad ones, it was the worst. I couldn’t figure out why I’d started crying and wasn’t stopping. I was afraid. He was afraid. We groped for but couldn’t find one another in all the fear. I felt better when I said to myself that falling-out hair was a symptom of the cure. Granted, I was the spouse. It wasn’t my hair. But that day made his mortality realer than it’d been, even brain surgery day. After that, it got better and so did he. People survive. Happens every day. I’m rooting for you. And I’m all ears.
February 3, 2007 at 3:39 am
i hear you. and, i would like to say i find it amazing– what a beautiful noise love makes, even when it’s describing something so terrible.
p.s.
there’s a whole slew of strangers in michigan, listening and sending positive vibes into the west…
February 3, 2007 at 7:13 am
I hear you.
February 3, 2007 at 8:19 am
Listening.
February 3, 2007 at 3:14 pm
You are heard in Nebraska. I cry for you and your family but I pray for them too-to have the strength and continue to love as you already are. I pray for your lost little one and I pray for your dear sweet Lydia-she is an amazing little soul who has so much love and compassion in her heart.
February 3, 2007 at 4:03 pm
We hear. We’re here. We love you. There is room enough for all of this and all of everything.
Laurie
February 3, 2007 at 4:18 pm
I hear.
February 4, 2007 at 12:27 am
I’m listening, I’m praying, and I’m hoping.
February 4, 2007 at 3:09 am
What’s happening to you has touched me to the deepest core of my being. I’m praying for you and thinking of you all often. You all are love personified.
Listening in St. Louis.
February 4, 2007 at 11:11 am
hear you loud and clear
February 4, 2007 at 2:47 pm
Listening. Hearing. Praying.
February 4, 2007 at 3:18 pm
You are being heard.
February 5, 2007 at 2:37 am
[...] needs to be heard here: It’s a beautiful blog about how to live, as she tells how she’s surviving lymphoma. I just left her site, and I [...]
February 5, 2007 at 8:04 pm
our ears are wide open.
February 6, 2007 at 3:35 am
Hearing you.
February 8, 2007 at 6:07 pm
I’m just another stranger, hearing you and praying for your family, from Chicago.
You are all beautiful.
February 9, 2007 at 1:53 pm
Listening and hearing in Cleveland, Ohio. Thoughts and prayers are with you and your family. You are strong.
February 21, 2007 at 3:37 am
Dear L, L, and D,
So I sprinkled Gerber sweet potato puffs on the carpet in the playroom for my 8-month old daughter to eat and put on “Toy Story 2″ ( our son Mason, also 2 1/2, has never seen 1) so I could read your blog. Being a pediatric oncology nurse for years and now working at a hospice for kids, I have heard stories similar to yours for years. But you both are amazing at telling your stories. I was compelled to read each and every one of your entries tonight. By only working with people at the chemo time of their lives or at the end of their lives, I believe I am short-sighted because I don’t see the whole picture. My husband Paul Moore told me what you two have been through lately while we were in Oregon fixing up a duplex that we bought. I was so full of shock and sadness, even though I deal with life and death on a regular basis. I am so sorry that you, Leanne, has to go through this. I just want you to know that Paul, Mason, (Reese, if she could) are all thinking of you. It is so different, adults and children dealing with cancer. You may or may not know, kids tend to ” bounce back” as they say from cancer. After almost 10 years of being a pediatric nurse, but I have never gotten used to people dying. There are MANY people who are surviors, and I am certainly hoping that you will be one until old age. Love, Debbie
June 21, 2008 at 1:19 am
I read, and I too understand…too many of us do and so some become complacent.
I have only just recently learned that my Dad has cancer. It just hurts so much
I am sorry for you, for everyone that has to go through this.
Prayers